Patient Story Spotlight: Jordan, 17

Jordan was born with multiple heart defects, including congenitally corrected transposition of the great arteries (CCTGA), pulmonary atresia and a ventricular septal defect (VSD).

As an infant, Jordan had an ascending aorta-to-main pulmonary artery shunt and an epicardial pacemaker placed. As he grew older, he underwent several surgical revisions and implantation of a defibrillator. But by September 2010, Jordan’s heart had begun to fail, and he was placed on the waiting list for a heart transplant.

As time passed, Jordan’s condition continued to deteriorate, and he was admitted to Texas Children’s Hospital with heart failure symptoms and kidney insufficiency. Over the course of the following weeks, he was in and out of the cardiovascular intensive care unit. In May, his condition became dire when all of his organs began to fail and he was placed on a ventilator. To save his life, doctors implanted the SynCardia temporary Total Artificial Heart (TAH).

After 160 days of life with the TAH, he received his donor heart transplant.

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