Patient Stories

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Lance, 47 Congestive Heart Failure Caused by Dilated Cardiomyopathy

Lance was diagnosed with dilated cardiomyopathy at age 47. After losing consciousness in the waiting room of his doctor’s office, he was rushed to the hospital. When his doctors discovered his ejection fraction was less than 10%, they knew they had to act fast.

Johnny, 55 "Widow Maker" Heart Attack and Cardiomyopathy

Johnny was diagnosed with cardiomyopathy after suffering a “widow-maker” heart attack. A subsequent angiogram showed that his ejection fraction was only 14%. Doctors tried multiple interventions to treat his heart failure, including stents and an implantable cardioverter defibrillator (ICD), but a few weeks later, he went into cardiac arrest. Read Johnny's story.

Jaheim, 11 Hypoplastic Left Heart Syndrome

Jaheim was born with a congenital heart defect called hypoplastic left heart syndrome, in which the heart has just one working chamber. He received his first heart transplant in 2012. However, a few years later during a routine check-up, tests revealed that his donor heart was failing because of rejection. Read Jaheim's story.

Tom, 49 Cardiac Sarcoidosis and Dilated Cardiomyopathy

Tom was diagnosed with dilated cardiomyopathy caused by a rare disease called cardiac sarcoidosis. One day, Tom received 11 shocks in five minutes from his defibrillator. He was experiencing what is known as a “v-tach storm.” He woke up two days later in the ICU, where doctors told him he wouldn’t survive more than another day unless they took action. Read Tom's story.

Danielle, 22 Marfan Syndrome and Endocarditis

Danielle was born with Marfan syndrome, a genetic disorder that affects connective tissue. At 22 years old, doctors discovered a massive infection of her heart had led to endocarditis. Surgeons hoped to repair the damage, but as Danielle lay sedated waiting for surgery, her heart suddenly stopped beating. Read Danielle's story.

Stan, 23 Arrhythmogenic Right Ventricular Dysplasia (ARVD)

Stan was born with a life-threatening hereditary heart condition called arrhythmogenic right ventricular dysplasia (ARVD). Surgeons implanted a defibrillator to help regulate Stan’s heart rhythm, but over time, his condition deteriorated and his body began retaining fluid at an alarming rate. Read Stan's story.

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