Patient Stories

Johnny, 55

Johnny was diagnosed with cardiomyopathy after suffering a “widow-maker” heart attack. A subsequent angiogram showed that his ejection fraction was only 14%. Doctors tried multiple interventions to treat his heart failure, including stents and an implantable cardioverter defibrillator (ICD), but a few weeks later, he went into cardiac arrest. Read Johnny's story.

Jaheim, 11

Jaheim was born with a congenital heart defect called hypoplastic left heart syndrome, in which the heart has just one working chamber. He received his first heart transplant in 2012. However, during a routine check-up in October 2016, tests revealed that his donor heart was failing because of rejection. Read Jaheim's story.

Tom, 49

Tom was diagnosed with dilated cardiomyopathy caused by a rare disease called cardiac sarcoidosis. One day, Tom received 11 shocks in five minutes from his defibrillator. He was experiencing what is known as a “v-tach storm.” He woke up two days later in the ICU, where doctors told him he wouldn’t survive more than another day unless they took action. Read Tom's story.

Danielle, 22

Danielle was born with Marfan syndrome, a genetic disorder that affects connective tissue. In 2011, doctors discovered a massive infection of her heart had led to endocarditis. Surgeons hoped to repair the damage, but as Danielle lay sedated waiting for surgery, her heart suddenly stopped beating. Read Danielle's story.

Stan, 23

Stan was born with a life-threatening hereditary heart condition called arrhythmogenic right ventricular dysplasia (ARVD). Surgeons implanted a defibrillator to help regulate Stan’s heart rhythm, but over time, his condition deteriorated and his body began retaining fluid at an alarming rate. Read Stan's story.

Bob, 50

Bob was in and out of hospitals for over two decades trying to manage his cardiomyopathy, eventually developing atrial fibrillation and atrial flutter. Over the years, he was implanted with five types of pacemakers and defibrillators, but in February 2013, his heart began to fail rapidly and he was admitted to the hospital. Read Bob’s story.

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